After a backlog of comments from people with ARVD or heart rhythm issues, I decided it was time to post an update and answer a few of the questions regarding ICDs, ARVD, and heart rhythm. I’ll start with the ICD. … Continue reading
The biggest issue for me in these last 4 months while I’ve been banging my head in a sedentary underworld is: “what now?” I’ve asked the question to both my doctors and although I’m diagnosed with one of the few … Continue reading
At this point, I still have many questions regarding my diagnosis how it all adds up to the relatively morbid diagnosis of ARVD. On one hand I’m much more accepting of ARVD than I was 8 months ago – so … Continue reading
Checking in here at Johns Hopkins for the visit that would tell me if my heart is healthy to ride on through life, or if the railroad switch was pulled sending me into the fascinating world of ARVD. Although my … Continue reading
It’s been a while since my last cardiac update and it’s nice to hear from others who are interested in ARVD or have the misfortune of being in the same boat. It’s been 9 months since my epicardial surgery and … Continue reading
Today I visited Mass General Hospital only 3 weeks since my open heart epicardial surgery. I last left the doctor under the pretense that I would never be able to run, jog, skip, paddle, pedal, climb, lift, hit, throw, skate, … Continue reading
By far the worst part of the whole experience was the hazy communication regarding my condition. The doctor who performed the Epicardial Ablation is very good. So good, he’s busy keeping up with the demand and it’s no surprise he’s … Continue reading
On Sunday my wife and I drove down to Boston which was a story in and of itself with massive traffic jams and a flaming car explosion worthy of a box-office hit. We managed to use the GPS to our … Continue reading
It’s been a while since I last entered a sporting competition with any sort of training or ambition to “win”. I had to step down from these notions more than a dozen years ago. No one knew why, I didn’t … Continue reading
After 2 full years trying to diagnose and treat my heart so it provides blood, oxygen, and beats normally, I finally received a definitive conclusion from my cardiologist. Actually my cardiologist is awesome and he does know. But what he … Continue reading
Last we left off, the process of a simple cardio ablation was covered and although it’s an amazing procedure pioneered in the last 20 years or so, it really is a simple procedure for the patient. If you’re reading this … Continue reading
I’ve always thought health stories are a bit of taboo, like an old lady telling you about her bunions or gall bladder – it’s not a necessary or a desired story that most want to hear. However, I have found … Continue reading
Turns out, overnight at the cardiology ward isn’t half bad: Nurse: “Would you like some more water?” Me: “Yes, please” Nurse: (Looking at the waterbottle full of ice) “Would you like it mixed with anything?” Me: “You mean you have … Continue reading
After a pre-op on Friday and the 3rd (and hopefully final) heart surgery on Monday, it was nice to escape on a long solo 100 mile ride to collect thoughts, or lack there-of.
This is my HR (red), altitude (green), and time (x-axis) data from the sportive in the Pyrenees. You may notice that everything seems nice and familiar until about 7 minutes into the climb up Tourmalet when the HR data hits … Continue reading
